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囊性纤维化患儿的生活质量

Objective: To review health-related quality of life (QOL) and associated issues and to describe a study investigating “ Child Health Questionnaire” (CHQ) scores in relationship to newborn screening (NBS) for cystic fibrosis (CF) and markers of disease severity. Methods: A total of 36 patients from 10-15.5 years old who were enrolled in the screened or control group of the Wisconsin CF Neonatal Screening Project compl  (本文共2页) 阅读全文>>

《世界核心医学期刊文摘(儿科学分册)》2006年10期
世界核心医学期刊文摘(儿科学分册)

在昆士兰囊性纤维化治疗中心和当地囊性纤维化延伸服务机构接受治疗的囊性纤维化患儿和青少年的生活质量

Objectives: To assess the health- related quality- of- life (HRQOL) of children/adolescents with cystic fibrosis (CF)- and compare HRQOL in children managed by cystic fibrosis outreach service (CFOS) with those treated in a cystic fibrosis center (CFC). To compare HRQOL of children with CF in Queensland with previously published HRQOL data from the United States and examine the relationship between HRQOL scores and p...  (本文共1页) 阅读全文>>

《世界核心医学期刊文摘(神经病学分册)》2006年01期
世界核心医学期刊文摘(神经病学分册)

夏科-马里-图思病患者的生活质量

The authors evaluated quality of life in Charcot-Marie-Tooth disease by administering the Medical Outcome Study Short Form-36 (SF-36) questionnaire to 121 Italian patients. Patients scored lower on al...  (本文共1页) 阅读全文>>

《世界核心医学期刊文摘(儿科学分册)》2006年03期
世界核心医学期刊文摘(儿科学分册)

比利时近期青少年移民的健康和生活质量:校内的医学筛选和预防作用

Objectives. -Little is known so far about the health of newly immigrant adolescents. The present study aimed to evaluate their health and quality of life (QoL) and to reinforce prevention and health promotion in school medicine. Methods. -One hundred and fifty-eight adolescents (mean age: 15,4 years) from 37 nationalities were included in the study in two health centers in Brussels. This study was carried out by medi...  (本文共1页) 阅读全文>>

《世界核心医学期刊文摘(儿科学分册)》2006年04期
世界核心医学期刊文摘(儿科学分册)

急性淋巴细胞性白血病儿童存活后青少年时期的生活质量

Purpose. - To evaluate how adolescents and young adults cured of acute lymphoblastic leukemia (ALL) treated during childhood have integrated the disease, and possible death related to cancer. Particularly, we have focused on experiences related to diagnosis announcement, hospitalisation and treatments and consequences on their social, psychological and somatic behaviour. Patients. - Forty-one patients cured of ALL ha...  (本文共1页) 阅读全文>>

《世界核心医学期刊文摘(儿科学分册)》2006年08期
世界核心医学期刊文摘(儿科学分册)

感染HIV儿童和青少年在高活性抗逆转录病毒治疗下的生活质量

Objective.-To evaluate Quality of life(QoL)of HIV-infected children under highly active antiretroviral therapies,and its change over 18 months.Material s and methods.-QoL was evaluated by self-administred questionnaires(french v ersions of AUQUEI,OK-ado,and compilation of both)in 23 young living with HIV /AIDS(6-15 yrs),under antiretroviral multitherapies,and re-evaluated 18 mon ths later in 19 of them.Results.-At ba...  (本文共2页) 阅读全文>>

《咸宁学院学报(医学版)》2006年04期
咸宁学院学报(医学版)

术后化疗时机的选择对老年非小细胞肺癌患者生活质量的影响

“追求高质量的生活,不延长痛苦的生存”已成为越来越多的癌症患者及其家属的治疗目标,因此,对癌症患者进行生活质量的评价...  (本文共2页) 阅读全文>>